The Fam

The Fam

Sunday, May 11, 2014

Fisher's 1st Birthday

The past twelve months have been some of the fastest of my life. It truly does feel like it was yesterday when I had my c-section and heard Hooper say the words, "It's a boy!" (Click here to read his birth story.) It has been absolutely amazing being the mama to a little baby boy. He is just so so so incredibly sweet. I was reading back on Finley's first birthday blog post and I'm so glad that I wrote about what all she was doing at that age. Fisher isn't quite where she was, but I think she was way ahead of the game. He isn't walking yet, but he's closer and closer every day. He gives kisses, he waves and says "hi" (especially to the baby in the mirror), he waves and says "bye bye", he now says "nana" for banana, he says "dada" and "mama". Thankfully he's a really great sleeper. He loves bath time, he does great for car rides, he eats A LOT, and he loves to play outside. He's got the two middle bottom teeth and the two top teeth will peek through any time now. During the weekdays while he's at my mom's, his second nap of the day is a Gigi lap nap. He usually needs his nap at the same time that Finley and Bennett are taking their nap in the back room. So mom just tells him to shhhh and he puts his head on her and falls right to sleep. He's just such a cuddle bug. For his first birthday party, I didn't want to go overboard, but I definitely wanted to celebrate with friends and family. We decided to just do the party in our backyard and have snacks and a jumpy house. It really worked out perfectly. The weather was decent, the jump house kept the majority of the kids occupied, the adults were all able to visit, and the swing set and extreme coaster kept the kids busy that didn't want to jump in the jumpy house. I wish that I would've taken a photo of the entire backyard, but I forgot. We had 36 inch balloons and a dozen regular balloons tied all around the yard. Those 36 inch balloons are something! I had to put all of the backseats in the van down to get them home. They are also SUPER expensive to have filled! I won't be ordering any of those again unless I have another child. In that case I'll need to order one red balloon to follow the tradition of the first year picture that I've done with Finley and Fisher. For the party I ordered some cookies from a friend of mine and Anna's as the party favors. They turned out so cute! I also ordered his smash cake and a sheet cake for the guests from a friend that I work with. They turned out EXACTLY how I wanted, and they were soooo delicious! It really was a perfect birthday party day, and Fisher seemed to have a great time. ESPECIALLY when he got his cake. :) (Warning: Photo overload ahead!) 

(The Bennett panty pic is priceless to me!) 

Thursday, May 8, 2014

Genetics Appointment

There's so much to catch up on, but before I get into a long post, enjoy a few photos from the past several weeks that don't really have a certain area in this post that they belong. 
 Finley & Fisher at Hooper's show

 Fisher LOVES Beckett. And I love that he actually puckers up for kisses. 

My mom sent me this one day. The swing put him to sleep. :)

Bennett, Elliott, Beckett, Finley & Fisher on Easter

For 3 months I kept my cell phone on vibrate and kept it in my pocket at work. I was anxiously awaiting a phone call telling us that there had been a cancellation, and we could get in to see the geneticist sooner than April 29th. That cancellation phone call never came, and we had to take Fisher on his very first birthday to the genetics appointment. We really didn't know what to expect, but we had hoped for were some clearer and firmer answers regarding Fisher's longer leg. 

The appointment started out with a nurse asking us about our health and our family members' health history. She drew out a family tree with a little circle and square stencil. After all of the questions, Dr. Kukolich came in. I liked her immediately. She took all kinds of measurements from Fisher and plugged them into her computer. She showed us where he is compared to other children his age. His weight is average, he's a little tall, and he has a really big head. She told us his head measures off the chart, but that she can tell by looking at Hooper that he gets that from him. :) She even pulled out this cute little ducky measuring tape and measured Hoop's head. Then she plugged his measurement in the computer and sure enough, his is off the charts, too. She confirmed that Fisher has hemihypertrophy, and that it is only in his leg. She doesn't suspect that it'll continue to grow faster than the other. (Sidenote: we've been pronouncing it wrong this whole time. To quote one of my favorite movie quotes that comes from a movie I remember absolutely nothing about except this quote from Mike Myers, we were putting the "emPHAsis on the wrong syllALble". It's pronounced hemihyPERtrophy.) We asked her several questions about it, and she was super informative. She said that the odds of us having another child with it are very low. (Hoop would then chime in, "also, the odds of us having another child at all are very low".) Dr. Kukolich follows about 6 children that have hemihypertrophy currently. In all her years, she's only had one that developed a Wilms tumor, and they caught it early and all was well. We will have to have the renal ultrasounds done every 6 months, and lab work every 6 months. We did an ultrasound 3 months ago, and did the lab work at this visit. So we will be keeping an eye on things every 3 months, even though we are doing them every 6. She said that she actually does have a patient right now that had a Wilms tumor and his doctor hadn't ever caught that he had hemihypertrophy. So he went to the hospital with the tumor, and when they examined him they were like, "wait a minute. He's not symmetrical." That just makes us even more thankful for Dr. Watts and how awesome she is at catching everything so quickly. The whole appointment was really good. I left feeling a lot better about the whole situation. We had to leave from there and go to Cook's to get the blood drawn, and that was so awful. Poor little man was so sad and it just didn't seem right to have to get poked by a needle on your birthday. After it was all said and done he did get his first sucker though. Cheered him right up. 
The three of us went to lunch afterward (Finley was at my mom's), and it was really nice to get to spend a lot of undivided time with him. We have never spent that much time with just him, and I felt like he deserved that on his birthday. We went to Target and picked him out a new toy and he had so much fun. Other than the blood draw, it was a really great day. 

Two days later the nurse called me about the lab work. She said that the specific panel they run is a tumor indicator. It's called Alpha Fetoprotein, Tumor Marker. The normal range for a 12 month baby boy is 0.5 - 7.9.    Fisher's was 11.3. She said that Dr. Kukolich isn't TOO concerned with it, but she'd like to repeat the lab work in 3 months instead of 6. When babies are born this number is very high, and as they age it gets lower and lower. She's thinking that maybe his just hasn't dropped to normal just yet. (Pray that she's right!) 

We went to his 12 month checkup yesterday with Dr. Watts and everything is great as far as his normal stuff. He says hi, mama, and dada. And recently he has called a banana "nana" twice. He's getting closer and closer to walking, but he's not there yet. He's still the sweetest little baby I've ever known. He was giving me so many kisses while Dr. Watts was asking me questions that I could barely talk to her! 

All in all, hemihyPERtrophy is just something we've got to deal with. It certainly doesn't even compare to some of the things that families have to deal with, so I feel a little silly for even acting like it's a big deal at all. So my kid has one leg that's two centimeters longer than the other, big deal. We've got great doctors and specialists that are keeping a close eye on him, and everything will be fine.